Here you will find a few helpful links...shown in alphabetical order.
Bleeding Disorder Foundation of Washington
www.bdfwa.org
Note: There are bleeding disorder foundations located all over the world. Contact your local Hemophilia Treatment Center (HTC) to find the one nearest you.
Volunteer, nonprofit service organization dedicated to improving the quality of life of families affected by bleeding disorders and complications of those disorders, such as HIV/AIDS and hepatitis.
Centers for Disease Control and Prevention www.cdc.gov
The CDC supports a network of specialized healthcare centers to prevent and reduce complications experienced by people with blood disorders. Currently, the network consists of approximately 140 hemophilia treatment centers (HTCs), eight hemostasis and thrombosis centers, and six thalassemia care centers. CDC is working to increase the number of centers.
For helpful information, search the CDC website for HemophiliaTreatmentCenter and Women.
Supported by the National Hemophilia Foundation, there are many topics that are covered. Get answers on how bleeding disorders, including von Willebrand disease, affect women and girls.
A Family Matter - article of a family with Factor V deficiency
Provides educational tools for people and families living with hemophilia and for the for-profit and nonprofit organizations that serve them. The Parent Empowerment Newsletter (PEN) and other valuable educational tools can be sent to you free of charge, just for the asking.
Nonprofit 501 (c) (3) charity organization and international social network.
National Hemophilia Foundation (NHF)
www.hemophilia.org
Nonprofit organization dedicated to finding better treatments and cures for bleeding and clotting disorders. Sponsors Project Red Flag.
Project Red Flag
www.projectredflag.org
National Hemophilia Foundation's public awareness campaign to reach the more than two and a half million women nationwide with undiagnosed bleeding disorders. Educates women and their healthcare providers about the symptoms of bleeding disorders, especially von Willebrand disease (vWD), and encourages proper diagnosis and treatment.
Puget Sound Blood Center Hemophilia Treatment Center www.psbc.org/patient/hemophilia
Hemophilia Care Program of PSBC helps people with hemophilia obtain early, effective treatment and acquire skills that foster independence and minimize the acute and chronic complications of hemophilia.
Project SHARE www.kelleycom.com
Humanitarian program devoted to donating factor concentrates to the bleeding disorder community in developing countries.
Save One Life
www.saveonelife.net
Nonprofit international organization offers individuals, families, companies, and/or organizations the opportunity, for a small monthly gift, to sponsor a child or adult with a bleeding disorder in a developing country.
World Federation of Hemophilia (WFH)
www.wfh.org
International nonprofit organization established in 1963 to improve treatment and care for people with hemophilia and other inherited bleeding disorders worldwide.
World Federation of Hemophilia USA www.wfhusa.org
Affiliated organization of the WFH. Susan Skinner Memorial Fund scholarships support young women with bleeding disorders worldwide.
World Health Organization (WHO)
www.who.int
Directing and coordinating authority for health within the United Nations system.
