Co-Director,
Hemophilia Treatment Center,
Puget Sound Blood Center, 1973—1987 And
Director, 1987—2008.
Professor
Emeritus, Medicine and Hematology, University
of Washington, Seattle, Washington
"The
D'Ambrosio story portrays many of the trials and tribulations associated with
raising two daughters with a bleeding disorder, highlighting the critical role
of family support and advocacy. Their story underscores the importance of parents
fostering personal competencies and self-efficacy for early recognition of
bleeding problems and for obtaining prompt and effective treatment. But the vivid
unfolding of their narrative reveals disturbing flaws in our healthcare system
where professionals all too often fail to hear the voices of the real experts,
patients and their families. Embedded is judicious advice not only for individuals
and their families, but also notably for healthcare providers. Emanating from
these personal experiences is a call for continued development of strong
interdisciplinary healthcare teams that embrace a holistic care perspective and
a capacity to coordinate team functions to address the complexities of treating
bleeding disorders and their associated physical risks, as well as related
social and emotional ramifications. While there are challenging journeys ahead
for this family and others, I envision smoother roadways given the insight and
wisdom captured in this compelling chronicle."
